Request for Citations
This is for the research ethics course I'm teaching this semester. I'm looking for references to studies that may have prompted one of the primary concerns of feminist research: the relationship between researcher and participants. Can you think of any examples of studies in which the relationship between researchers and participants suffered from a severe power imbalance, resulting in harm to the participants, especially studies actually referenced by feminist researchers as evidence for the need to empower participants in the research process? There are the obvious ones:
1. The studies in Nazi concentration camps that prompted the Nuremberg Code
2. The Tuskeegee syphilis study
3. The John/Joan study
4. The Thalidomide clinical trials
But there must be others. Actual bibliographical citations would be terrific, but are not necessary; I'd be happy with simple leads I could look into.
Comments
The Milgram prison
The Milgram prison experiment? It's somewhat different, though.
I recall there being a lot of issues in testing different long-term birth control options in Africa (Norplant? Depo-Provera?) but can't remember any of the details -- it was in a course I took on gender, race and science (if you want I will email you the name of the prof, in the vain "keeping my educational details secret" hope -- just email me). There were also all the CIA LSD trials here in Montreal. Arguably the Dionne quints.
wolfa
Recent Example
A recent example is the use of foster children in AIDS/HIV research without the consent of biological kin or the representation of individual guadians ad litem. I have some references/links in a couple of posts that I wrote a while back:
http://blog.lib.umn.edu/perry032/impossible/sitbb_vault2_of_tw.html
Into the Heart
A few years ago, I read Into the Heart by Kenneth Good for an anthro course and it made me think a lot about ethical considerations when doing research. During the course of his research on the Yanomamo, he is offered a wife from the tribe(I believe she is in her early teens when he first meets her), who he subsequently marries and brings back into the United States. She has a lot of difficulty adjusting to life in the US and ends up going back to South America. Hope it helps!